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THE LATEST NEWS AND RESOURCES
Stay up-to-date on all things related to health data in Canada. If you have other resources that should be posted here, send us an email at info@healthydata.ca.
Webinars
November 21, 2024 at 3pm Eastern Time
or visit our Youtube Channel and subscribe to be notified when we release new recordings
News
December 21, 2024 | Canadian Medical Association Journal
This CMAJ article on the Connected Care Act explores how this proposed legislation aims to improve health data interoperability in Canada, enabling seamless access to complete health information for better patient care.
December 9, 2024 | Canadian Medical Association Journal
Read this article from the Canadian Medical Association Journal to learn about proposed indicators for assessing the interoperability of health data in Canada.
June 6, 2024 | Government of Canada
Read this news release to learn more about Health Canada and its proposed legislations “Connected Care for Canadians” to learn more about legislative changes that will enable data to be connected across the health systems.
BLOGS
The Healthy Data Collective is committed to showcasing different perspectives and thinking from individuals across the country, and across the health system. Whether you are actively working in healthcare, supporting the health systems, or an individual with lived experience, we would love to showcase your blog post here. Send us an email at info@healthydata.ca.
- Anne-Marie Parent
Unlocking the Power of Health Data Literacy: A Critical Step for a Healthier Future
- Anne-Marie Parent
Simple, Complicated, and Complex: Addressing Canada’s Fragmented Health Data
- Anne-Marie Parent
What is a Learning Community, and How Can It Accelerate Collective Impact?
Downloads
Interoperability Saves Lives
This report authored by the Alberta Virtual Care Coordinating Body provides information about the importance of interoperability. It introduces a health data harm framework showing that health data privacy is not the only way individuals or the health system can be harmed. It also explores the difference between human and technical interoperability factors.
World Class Health Data System for Canada
This report authored by the Policy Modernization Group provides a framework for action to create a World-Class Health Data System for Canada. It provides a summary of health data related issues about ethics, quality, literacy, governance, policies and more. The report offers policy recommendations for the Federal Government, Provincial and Territorials governments, and other key players.
Data Disarray
This report authored by the Alberta Virtual Care Coordinating Body provides an overview of the legislative and policy context that are shaping how health data is used and designed in Canada and provides recommendations to ensure these are adapted to support the evolution and use of health data in Alberta and Canada.
Websites
My Pathology Report
MyPathologyReport.ca is a free, patient-centered resource designed to improve health data literacy by providing clear, accessible explanations of pathology reports. It empowers patients and caregivers to better understand their health information and supports more informed conversations with healthcare providers.
Alberta Virtual Care Coordinating Body
The Alberta Virtual Care Coordination Body (AVCCB) is an advisory, oversight committee created by its sponsoring organizations and groups to promote principle-based health data governance, policy, regulation, workflow, and technology alignment across the health sector that promotes quality health programs and services.
Pan-Canadian Health Data Charter
As part of the Working Together to Improve Health Care for Canadians plan, federal, provincial, and territorial (FPT) governments, except Québec, committed to working together to modernize the health system by improving how health information is collected, shared, used, and reported to Canadians. The Pan-Canadian Health Data Charter reaffirms a common set of principles intended to guide collective action towards a shared vision for health data in Canada.
Falling Through the Cracks: Movie
Falling Through the Cracks: Greg’s Story is a short film on Greg Price’s journey through the healthcare system. The film gives a glimpse of who Greg was and focuses on the events of his healthcare journey that ended in his unexpected and tragic death. In spite of the sadness of Greg’s Story, the film is intended to inspire positive change and improvement in the healthcare system.
